Wednesday, March 16, 2011

Little Man

I want to start this post off with exciting news especially since the last few posts have been not-so-exciting)...

LITTLE MAN IS WALKING!

He is now non-stop motion... always busy... very independent... into EVERYTHING... a giggling, walking and talking machine! He says: daddy, mommy, Duke, Neo, dog, night-night, go, out, down, up, uh-oh, duck, cow, moo, quack, and more. He LOVES to dance and to be outside. We are SO proud of how far he has come :)

For some so-so news...
When we saw Dr. A (the boys GI doctor) a week ago for Big Man, I brought Little Man's muscle biopsy report. He read over it and we discussed it. I told him that we felt like we were in limbo, as in "Does he or doesn't he have a mito disease?"... and the million dollar question has FINALLY been answered... YES, he does.

Dr. A stated that Little Man doesn't fall into a particular complex (or category) according to the pathology report (which we knew). He stated that the complexes are helpful in predicting the future. Little Man's case is mild and unique. He stated that LM's biggest hurdles will be stamina and fatigue. We are hoping that LM's medications will help to prevent in his disease furthering. As for the future and what to expect, only time will tell.

We are happy to have a concrete answer.

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