Amazing News!

On Tuesday we received INCREDIBLE news... (I would have posted sooner but I wanted to let Preemie Awareness Day be just that)...

Little Man's microarray came back COMPLETELY NORMAL! Genetically speaking, he is normal - there are no deletions or duplications on any of his 46 chromosomes!

I feel like a huge weight has been lifted from my shoulders. I can breathe a little easier. God is SO good.

In other news, he is still most definitely allergic to milk. We tried a milk challenge with some Yo Baby yogurt and he broke out in hives wherever the yogurt touched. The first time we thought it may be related to the strawberry puree in it. The next day we tried banana yogurt... hives. I spoke to his GI doctor (well nurse who consulted with the doctor) and we are to continue avoiding all dairy products. Little Man will most likely continue on EleCare past the age of 1 and possibly around 15 months, we may try another milk challenge. We have a follow-up on December 1 to discuss our future game plan for Little Man.

Little Man saw a neurologist on November 8. Her only concerns were: (1) Macrocephaly - if his head continues to grow, she wants it followed with CT imaging studies; (2) scoliosis - curious about a possible cause but awaiting spinal MRI results; (3) his legs, upon opening are slightly floppy; this can be indicative of low tone but overall, his strength is great. Her suggestion was to have his PT work on this; and (4) he appears to be more right-hand dominant - selective handedness should not be seen in children until approximately 18 months old. His reflexes are the same on both sides, so there is no apparent cause for this. She wants his PT to work on strengthening his left side.

We are still awaiting the results from the metabolics testing that Dr. N ordered. I think we will receive those results in approximately 1-3 weeks.

Little Man has a big day approaching... on November 30, he will undergo (1) a frenuloplasty (clipping of the skin that connects the upper lip to the gum line - Big Man had the same procedure done in April), (2) an ABR hearing test, (3) brain MRI and (4) spine MRI. We've been informed that the procedures, in total, will take around 5-6 hours. Daddy & I are preparing ourselves for that long day, but we hope to receive more incredible news!!

Please keep our family in your thoughts and prayers on November 30. Thank you.